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NOTA cares
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NOTA cares

NOTA cares

@notacares
   
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11 Volgers
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14 jaar oud
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NOTA cares
NOTA cares
2 d

NOTA Cares isn’t a dry medical portal packed with jargon. It’s a global community built by people who have lived this journey, and who refuse to let families feel alone. Through heartfelt stories, shared wisdom, and real-world encouragement, NOTA Cares has become a place where strength grows — not in isolation, but in connection.

https://notacares.stck.me/post..../1550805/Finding-Hop

Finding Hope and Support: A Personal Journey with Tyrosinemia and NOTA Cares
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Finding Hope and Support: A Personal Journey with Tyrosinemia and NOTA Cares

When our daughter was first diagnosed with Tyrosinemia, we felt overwhelmed — like we were navigating an unfamiliar map with no compass. The medical terms, rare-disease resources, and countless appointments blurred together into an emotional whirlwin
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NOTA cares
NOTA cares
1 w

At NOTA Cares, we stand beside families navigating the challenges of Tyrosinemia Type 2. From diagnosis to daily care, you’re not alone. Our mission is to offer support, education, and hope-every step of the way.

https://notaorganization.mediu....m.com/guiding-tyrosi

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NOTA cares
NOTA cares
2 w

📘 Learn, Understand, Advocate!
Tyrosinemia medication can be confusing — especially for new parents. From nitisinone basics to safety and monitoring, our guide gives you trusted information in one place.
✨ Start learning: https://notaorganization.mediu....m.com/complete-resou

#meded #geneticdisorders #notacares #healtheducation

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NOTA cares
NOTA cares
3 w

Has you or a loved one been diagnosed with Tyrosinemia? Understanding how this rare metabolic condition affects the body can help in managing it better. This blog is specially written for patients, caregivers, and those who are looking for reliable and simplified information about Tyrosinemia, including its types and symptoms.


https://notaorganization.mediu....m.com/how-tyrosinemi

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NOTA cares
NOTA cares
7 w

Advocacy and Education for Tyrosinemia Patients

NOTA Cares advocates for early detection, better access to treatments, and improved medical support worldwide. Through educational blogs, expert sessions, and global collaborations, it
https://notacares.org/medications/

NTBC Therapy for Tyrosinemia | NOTACares Medication Support
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NTBC Therapy for Tyrosinemia | NOTACares Medication Support

Learn about NTBC therapy for Tyrosinemia with NOTACares. Get essential medication support, resources, and guidance for effective treatment.
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